Ava has Vesicoureteral (Urinary) Reflux
I'm sure you are all sick of hearing about Ava's kidneys by now, but here's the latest for those who've been asking:
She went to the hospital for her tests yesterday. The doctor who did the ultrasound, wouldn't tell me if she has current damage to her kidneys, so I'll have to wait for her doctor to get the results. We did however, get the results of the VCUG test. And as the doctor suspected, she does have reflux in her kidneys. There's a little flap that isn't working, so instead of all the urine emptying out of her kidney, some leaks back up into it. It's a level 2 of 5; five being the worst. She'll have to see a specialist for treatment. Most likely she'll be on antibiotics for a year, and then she'll have the VCUG test again to see if her body has corrected itself. Or, depending on what the specialist says, she'll have surgery. So, at least it's not a five in severity and hopefully there is no damage done to her kidneys already. If that's the case, she should have a really good prognosis!
The VCUG was done around 1:30 yesterday afternoon, and by 9:30 she still hadn't gone pee-pee. All her doctors (yes, I called all three!) said she was probably scared and sore. She would grab herself, double over and fall to the floor and cry. So sad. We tried warm baths, advil, etc but nothing worked so her doc's said to take her immediately to the ER. Yeah, like that's where I wanted to go AGAIN! I called around and they were all slammed, I knew it would be an all nighter. So we were so blessed; Joe's a Urologic Pharm. Sales Specialist, so he knows a lot of urologists. He called one that he's pretty good friends with and he invited us down to his office (at 10pm!), opened it up and did the cath for her right there. Yeah, isn't that AWESOME! Thanks so much Chris Morris - You're my Hero! We would have been at the ER for hours, and he did the whole procedure in 10 minutes! He actually did the cath faster than the pediatric specialist at the hospital! We owe him big time and will be taking him and his wife out for dinner this weekend!
Oh, and a HUGE thank you to my Mom for coming to the hospital today and spending five hours helping me with Ava. She was so good at trying to distract and play with her while the doctor did their tests. And when she couldn't comfort Ava, she'd rub my back and comfort me! She is so giving and loving - I LOVE MY MOM! Secretly, okay maybe not so secretly now, I still want my mom when I'm sick so it was sooooo good to have here there. Thanks again Mom!
So, today I'm just hanging out by the phone, waiting for a call to see about any existing damage. I have a feeling there won't be any, so lets pray I'm right! :-)
Thanks to all my friends for being so concerned about her and me! :-) Love you guys!
To learn more about reflux, click on this link: http://kidney.niddk.nih.gov/kudiseases/pubs/vesicoureteralreflux/
3/15 UPDATE: Ava's kidneys are NOT DAMAGED!!!! Hooray!!!